Blog List - By Most Recently Updated (Tracking 300+ Trending Blogs)
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Scaramucci’s Vain Quest to Stop the Leaks
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There’s a new sheriff in town. He has strapped on his shooting irons and
has been hunting down varmints — varmints right in the ranch house. The
sheriff is...
1 hour ago
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Amnesty And Permission: Come And Get Yours Right Here
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I have decided to declare today A Day of Permission and Amnesty. I am
giving myself permission to not have to create anything, and amnesty from
guilt and s...
1 hour ago
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Global Pain, Fibromyalgia and the Insula – Ground Zero for Pain and Stimuli Issues in FM?
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[image: insula-fibromyalgia]
The “Global Pain” Diseases There are two kinds of “pain” in fibromyalgia.
There’s a more ordinary kind of pain – the burning, ...
3 hours ago
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Health benefits of tai chi: What is the evidence?
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This study reviews the abundant evidence on the health and fitness effects
of tai chi.
5 hours ago
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VIDEO: Objective Evidence and ME/CFS
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ME Analysis explains the PACE trial in lay terms.
5 hours ago
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Donate to ME/CFS Research While You Shop - Special Bonus!
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I have often touted* iGive* here on my blog, as a way to painlessly donate
to your favorite ME/CFS charity - for research, patient support, advocacy,
or w...
6 hours ago
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A letter to Sir Andrew Dillon , Chief Executive, NICE
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*Stonebird*
27th July 2017
Sir Andrew Dillon,
Chief Executive,
NICE
Dear Andrew Dillon,
*Re : Myalgic Encephalomyelitis*
I have cared full time, for 25 y...
7 hours ago
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Woman launches sustainable coffee cup business SoL Cups
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'I woke up one day and I couldn't walk': How chronic fatigue syndrome
turned one personal trainer's life upside down...and then inspired her to
launch a ...
12 hours ago
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Souvenirs from Slowtown - things I've learnt from having glandular fever / chronic fatigue: The zones of CFS / SEID
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Souvenirs from Slowtown - things I've learnt from having glandular fever /
chronic fatigue: The zones of CFS / SEID: Here is a little diagram I drew
to try...
12 hours ago
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The NICE guideline consultation: UK stakeholder submissions | 27 July 2017
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NICE issued its surveillance proposal document two weeks ago and asked
registered stakeholders to respond. The deadline for these submissions has
now passe...
13 hours ago
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Doxycycline dogs dosage - What is the dosage of doxycycline for cats - Media Newsline
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*Doxycycline dogs dosage - What is the dosage of doxycycline for cats*
*Media Newsline*
Doxycycline *fatigue syndrome* work this of is in z Up Science show...
17 hours ago
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The Benefits of Cannabis Supplements for Sick Dogs
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There is already a body of research available that proves how effective
natural cannabis treatments can be when it comes to helping humans who are
suffer...
21 hours ago
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Grant Review
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Disclosure: I participated in the preparation of one of the Collaborative
Research Center applications. Today and tomorrow, the applications for
ME/CFS Col...
1 day ago
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Work in Progress new and improved ...
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......hopefully also helpful blog about Chronic Fatigue, Fybromyalgia,
Candida overgrowth, diet, nutrition, GAPS, anxiety, depression, therapies
and my jou...
1 day ago
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To Sleep Perchance To Dream
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My apologies to the bard....
Sleep is very VERY important. Even more so when you have CFS/ME. We sleep
badly. We sleep badly for all sorts of reasons. ...
1 day ago
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Zinc – What do we know in 2017
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“We found that serum zinc was significantly lower in the CFS patients than
in the normal controls. There was a trend toward a significant negative
correlat...
1 day ago
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'Is that Mummy? No, that's Guitar George.'
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Guitar George is the guitar tech / friendly wizard ...(as in, 'Check out
Guitar George, he knows all the fancy chords') and - unlike me- George made
it ...
2 days ago
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All done and dusted
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The hospital saga is finally over. During the past 6 months there has been
WAY too much emphasis on medical issues. Hospital appointments, procedures,
surg...
2 days ago
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Trial by Error: NICE Declines to Disclose Names of Experts
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http://www.virology.ws/2017/07/24/trial-by-error-nice-declines-to-disclose-names-of-experts/
24 July 2017
By David Tuller, DrPH
The Countess of Mar, a w...
2 days ago
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Trial by Error: NICE Declines to Disclose Names of Experts
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By David Tuller, DrPH The Countess of Mar has received a negative response
to her request for the names of the experts involved in the review of the
NICE g...
3 days ago
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Fictional male role models
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Last year, I wrote this blog post about my favourite female fictional
characters. The announcement that the new Doctor is going to be a woman
(I’m incred...
3 days ago
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Sleep tracking and ME/CFS
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Most people would agree that good, solid sleep is essential to recovery, or
stability, in ME/CFS. Some doctors talk some about sleep, some not at all..
My...
3 days ago
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MRI mostly negative, but huge sinus cyst visible
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Last month I wrote about my consultation with a neurologist because of
ongoing, intermittent pain in my fingertips and big toes, and a feeling of
decreased...
4 days ago
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The Incident- one the cruelty of some and the support of others.
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*The Incident Of Thursday July 13th, 2017 *
*Even a week later it is difficult for me to relate the events of that day.
It was terribly traumatizing for m...
6 days ago
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HUMAN RIGHTS VIOLATIONS AND ETHICAL DECISION MAKING ABOUT CHRONIC LYME DISEASE
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Published on Jun 2, 2017 Presentation to UN Special Rapporteur on Health
and Human Rights, June 8 2017, as a member of the Ad Hoc Committee for
Health ...
1 week ago
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National Disability Voter Registration Week: July 17-21
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From Disability Organizing Network noreply@disabilityorganizing.nethide
details To SacWriterEditor SacWriterEditor@aol.com Cc Bcc show image
slideshow ...
1 week ago
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“Dr. Google,” Friend or Foe?
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Here are a few of experiences I’ve had with Dr. Google, first as friend,
then as foe. I hope they serve as a guide to using Google wisely. It’s not
easy to...
1 week ago
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Hillsborough Law – Shifting the Balance in Favour of Truth
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The conversation on this You Tube ‘video’ took place on BBC Radio 4’s PM
programme on 11th July 2017 when Andy Burnham, prompted by host Eddie Mair,
propos...
1 week ago
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Nothing's New
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I haven''t written lately because I don't have much to say. Has this blog
reached it's inevitable end? Is there a reason to keep posting?
I am not working,...
2 weeks ago
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'Re-writing the hurt' (Jeanette Winterson)
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Podcasts can fill me with dread because *sometimes* they are dull and you
(often) can't fast-forward. I listened last night - lying down with my eyes
close...
2 weeks ago
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Praktisk tips: Ditt digitale arkiv!
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Som langvarig syk får du MYE papirer fra leger, sykehus og andre. Her er
mine beste tips til å få orden i kaoset! 1. Be om kopier av ALT! Epikriser,
lege...
2 weeks ago
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Headaches: Overdoing It, Anger/Anxiety and Adrenaline Withdrawl
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One of my most distressing symptoms of CFS for me is the tension headache
that never really goes away. Another friend recovering from CFS recently
mentio...
2 weeks ago
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Pain Management while Pregnant: Living with Fibromyalgia and ME/CFS
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One of the issues I considered before we decided to even try to start a
family was dealing with pain during pregnancy. Pain management while
pregnant is ...
3 weeks ago
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Collateral Damage in the Opioid Epidemic
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I wish I were writing this blog to report good news. Unfortunately, things
are no different today than they were in 2011 when the Institute of
Medicine (I...
3 weeks ago
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Zespół chronicznego zmęczenia - przewlekłe wyczerpanie bez określonej przyczyny. Objawy i leczenie - Gazeta.pl
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Gazeta.pl
*Zespół chronicznego zmęczenia - przewlekłe wyczerpanie bez określonej
przyczyny. Objawy i leczenie*
*Gazeta.pl*
Dokładne przyczyny zespołu prz...
3 weeks ago
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It’s Beginning to Feel Patriotic Around Here!
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Independence Day is one of my favorite holidays. Family time, lots of food,
and of course, fireworks fill our day of celebration. I really enjoy
decorati...
3 weeks ago
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GETSET: when your mates are the trial steering committee ...
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No problem making Endpoint changes during an unblinded trial if your mates
who also ignore all the evidence that #MEcfs is a physical disease (PACE
trial's...
3 weeks ago
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Guided self-help approach to graded exercise program is safe, may reduce fatigue for patients with chronic fatigue syndrome
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A self-help approach to a graded exercise program, supervised by a
specialist physiotherapist, is safe and may reduce fatigue for some people
with chronic ...
4 weeks ago
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Body’s in Trouble and SIBO Test From Hell.
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I am going to document this swiftly before the whole horror fades under the
sweet joyous glow of sugar and carbohydrates. Besides the first few years
of th...
5 weeks ago
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The Failure of Sick
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It has becoming increasingly clear I have outlived my usefulness. Who I am
has become intolerable. I'm too emotional, in too much pain, too angry, and
con...
1 month ago
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Join the YMCA and start swimming
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Hello Everyone, I am considering joining the YMCA so I can swim on a daily
basis. It is an easy way to get your exercise in without using too much of
your ...
1 month ago
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Moments In Time
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It's 95 degrees outside, and when I enter the yoga studio for my hot power
class it's 110 degrees. It's more than sweltering...it's suffocating. We
start c...
1 month ago
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Should Every Single Mother Take The Decision Of Remarrying Someone?
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Separation or divorce is one of the distressing events in everyone’s life.
But, in the modern society, the rate of divorce is still increasing. And
after d...
1 month ago
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Why Don't I Get A Baby?
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I wrote a post for my stroke blog last night, What About Me?, concerning
illness, physical healing, and miracles. I've thought a ton since then
about how ...
1 month ago
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2017 Midwinter Swing Festival
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Midwinter Swing Festival 2017 Stompin’ at the Savoy 3 June 2017 Dunedin,
New Zealand Photos ©Paul S Allen 2017 www.facebook.com/nothingperfectnz
Full galle...
1 month ago
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SO SENSITIVE
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Bonjour,
Recently I was told that I'm too sensitive and I replied by saying "Well,
yes I am actually!"
Being sensitive is part of our illness and inclu...
1 month ago
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Are You the Bull or the Butterfly?
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Contraction vs Expansion Contraction is a state of resistance, tension, a
need to control or protect. Expansion is a belief or faith that regardless
the ci...
2 months ago
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Trusting Myself to Build Healthy Relationships After Surviving Narcissistic Abuse
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Okay, first thing’s first. I do have multiple sclerosis. More specifically,
the diagnosis right now Clinically Isolated Syndrome, one of the MS disease
cou...
2 months ago
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WORTH A FIGHT
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I had just finished teaching a fantastic lesson about Judas Iscariot.. Some
in the young adult Sunday school class even Continue reading →
2 months ago
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ME/CFS/FM/SEID AWARENESS DAY
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I am aware of this every day, in every decision I make. Can I afford a bath
today? [Afford = how much energy will this cost me? How much do I have in
the b...
2 months ago
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ME/CFS Awareness Day 2017
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[image: ME/CFS Awareness]ME/CFS is a chronic disease that involves
debilitating pain, cognitive impairment, crushing exhaustion, and a host of
other nasty ...
2 months ago
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Why? Just Why?
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It's one thing to be told you have a disease that is not yet fully
understood, while doctors do their best to seek out treatments.
It is quite another th...
2 months ago
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Introducing Victor Darley-Usmar, PhD, an Alabama Researcher Now Helping in a SEID Study
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Day after day, from my bed, I watch my social media newsfeeds for some news
on my disease, especially for anything happening locally in Alabama. But
news, ...
3 months ago
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Dysautomnia – Hunt for Help
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I am much more knowledgeable about dysautomnia than I was when I last
pursued a diagnosis in 2011. I’ve been wanting to pursue it for a long time
but scree...
4 months ago
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Call for Models: Seeking Model from the Indigenous Community For Portrait
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Details Pay: $25/hr Time needed: 9-15 hours (usually in 2-3 hr chunks over
a few weeks) Location: Ottawa (near Civic Hospital) Experience Required:
None ...
4 months ago
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Sex differences in brain activity alter pain therapies
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A female brain's resident immune cells are more active in regions involved
in pain processing relative to males, according to a recent study.
4 months ago
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MOVING DAY? TRY MOVING MONTHS.
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Sometimes it's not smooth sailing.
Sometimes the waves are huge.
Sometimes the waves just slam you on the shore.
It's been quite some time since I...
5 months ago
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Galantamine and Ibudilast for ME
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This blog entry will examine the rationale behind Galantamine and Ibudilast
as treatments for ME both individually and in conjunction. I will also
detail m...
5 months ago
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A Debt That Cannot Be Repaid
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Originally posted on Confessions Of an Idiot:
In a country that most would struggle to find on a map, in a compound that
few possess the courage to enter, ...
5 months ago
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On Finding Purpose
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As I lie in this bed, watching the days slip by year after year, I yearn
for any potential break in the endless monotony. Even the simplest of
activity ca...
5 months ago
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Strength In Weakness
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This a a fantastic, short (only 4 paragraphs!) explanation of Why did God
say to Paul,"my strength is made perfect in weakness"?
https://www.raptureready....
6 months ago
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サインが必要なくなってきたクレジットカード支払い
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私は海外生活が長かったので、クレジットカードを使うことにすごく慣れていて、帰国し … 続きを読む →
6 months ago
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Phoenix Rising: The Gift That Keeps on Giving All Year Long
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*This holiday season Jody Smith turns her eyes to the people of Phoenix
Rising and gives thanks for you all …*
[image: pixabay-christmas-present-publicdo...
7 months ago
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The Reckoning and Rilke
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When all else fails write. Except I haven't been able to. But I need to
so I'll make an attempt at a post. More importantly though is a need to
focus on...
7 months ago
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ILADS 2016: Lyme Disease - An Evolving Paradigm for Chronic Illness
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The 2016 ILADS Annual event "Lyme Disease - An Evolving Paradigm for
Chronic Illness" was held in Philadelphia on November 3-6, 2016. This was
my 11th I...
8 months ago
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Down With The Sickness
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Briefly touching base here (and hoping I remember how to post!) to
recommend a new blog begun by a friend. Down With The Sickness is Good
Stuff, give her a...
8 months ago
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TAKE ACTION! Denounce Dr. Shorter Speaking at the NIH
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Professor Shorter's invitation to speak at the NIH is a travesty.Would a
prestigious national institution invite a Holocaust denier to speak about
World Wo...
8 months ago
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TAKE ACTION! Denounce Dr. Shorter Speaking at the NIH
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Professor Shorter's invitation to speak at the NIH is a travesty.
Would a prestigious national institution invite a Holocaust denier to speak
about World ...
8 months ago
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A New Direction
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When I published my blog post last week, “The #CoyneEffect: Is the ME
Community Stepping Up or Backing Down?” following my hiatus from advocacy,
I did not ...
10 months ago
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The utility of patient-reported outcome measures among patients with myalgic encephalomyelitis/chronic fatigue syndrome.
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Significant ceiling effects and concerns with reliability and validity were
observed among Multidimensional Fatigue Inventory-20 and RAND SF-36
subscales f...
10 months ago
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A new mascot for M.E.
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The M.E. community has been stirred into unusual activity for spoonies, by
the recent research by the Naviauxs, Gordon, et al, showing the peculiar
metabol...
10 months ago
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What even is ME?
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What is ME?
This, I find, is one of the hardest questions that people ask, many people
say is it just when 'your tired a lot of the time?' I wish it was ea...
10 months ago
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Oops! I Forgot I Had a Blog.
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That is my favorite fake excuse for abandoning you that I’ve been able to
come up with since I last posted here two years ago. The truth, of course,
is tha...
11 months ago
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Is It My Fault That I Have CFS?
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After I was able to actually be awake and ‘functioning’ enough to think
about it, and even maybe on a good day, read a paragraph of a book, I
suddenly ...
11 months ago
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My 22 years with Myalgic Encephalomyelitis
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I have had Myalgic Encephalomyelitis, or M.E, for 20 years. The CDC does
not recognize this. They insist that I have a condition called "Chronic
Fatigue ...
11 months ago
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Social media and a year of blogging
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I never used to be one for spending all day on social…
11 months ago
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Happy Fewer Pills Day!
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Lots has been going on health-wise but I’ve had a hard time writing about
it (or about anything). I am working on giving myself permission to not
feel guil...
11 months ago
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Why we feel so crap
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This is all a bit sciency for some but I think it’s important we understand
what’s happening in our bodies. Characteristics and consequences of
mitochondri...
1 year ago
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Dysbiosis and D-lactate
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Lactate (C3H6O3) is an intermediate of carbohydrate metabolism, produced
from pyruvate during lactic acid fermentation. Lactate can exist as two
enantiomer...
1 year ago
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I Still Love You - A Love Song
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When I was 14 years old, like a lot of teenagers, I dreamed of being a pop
star. Well, it never happened! I did learn to play the guitar and was soon
try...
1 year ago
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A Library Theatre Performance
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You know how much I love libraries; but you may not know I also love
theatre. I do love acting and performing, but even more-so there is little
I find as t...
1 year ago
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How I Turned Up Missing
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*San Francisco was my destination in 1992*, now it's the site of one of many
May 25 protests around the world about ME/CFS, and the "millions missing,"
of ...
1 year ago
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Never Give Up! – ME / CFS International Awareness Day 2016
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Having been diagnosed officially with Chronic Fatigue Syndrome (CFS / ME)
in 1992 I have had many times when I have seen no light at the end of the
tunne...
1 year ago
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May 12 – Awareness Images
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Today, May 12th is recognized as the Day of Awareness for Fibromyalgia (FM
or FMS), Chronic Fatigue Syndrome & Myalgic Encephalomyelitis (CFS & ME),
and Mu...
1 year ago
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I’d Like Some Water from Flint, Please.
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ME research has long deserved real, meaty, physiological research, but will
the government ever conduct it? If the Centers for Disease Control (CDC)
and t...
1 year ago
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Caged Bird: The Soul that Sings
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Hello, everyone! *waves wing*
It's been a while, hasn't it? Unfortunately, my body decided to have a
MAHOOSIVE crash last April, after several months' bui...
1 year ago
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Would you like to volunteer as our Social Secretary?
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Edmesh is looking for a volunteer Social Secretary. This exciting role
would involve organising fun and rewarding social events for the edmesh
community. W...
1 year ago
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Great piece on Severe ME
-
Great to see mainstream media carrying a piece that tries to explain the
hell of Severe ME. Thank you to Whitney's family for sharing photographs
of their...
1 year ago
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Ghana, First Job, and a Renewed Lease!
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Another year has passed. I am now settled into a degree program at CSU of
Fish, Wildlife, and Conservation Biology. It suits me, though I am highly
curious...
1 year ago
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Living with an Invisible Illness, My Life
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Jamie Sanders Ask anyone and they would tell you that there have been some
bumps in the road that they have had to overcome. No one person’s life is
ever...
1 year ago
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Taking Great Shots Of Your Baby
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Taking Great Shots Of Your Baby
*Taking Great Shots Of Your Baby* Your baby is very lovable, and nothing
makes a father or mother prouder than sharing pix ...
1 year ago
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The Condition Affects More Than Three Million Americans, And Is Pretty Common In Kids And Adolescents, Specifically Those With Generalized Epilepsy.
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In addition to these technical considerations, the summit also examined the
economic and social barriers standing in the way of the widespread have on
...
1 year ago
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Open letter to Francis Collins, director of NIH, concerning myalgic encephalomyelitis
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Dear Francis Collins:
The following happened since I got sick, without the NIH funding myalgic
encephalomyelitis (m.e.) as a global crisis:
1. Huma...
1 year ago
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Proof Positive?
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The SMILE trial is set against the background of an approach known as
‘biopsychosocial’. In the context of ME/CFS, this approach presupposes that
the initi...
1 year ago
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Suggestion to replace PEM by PAR – ME blogg
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Suggestion to replace PEM by PAR – ME blogg
I like the use of activity rather than exertion!
1 year ago
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Bowie
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This post has been a while coming because the shock of hearing of Bowie’s
death has taken time to sink in. He always seemed other-worldly and so it
se...
1 year ago
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For Audrey flower decal manicure
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Summer has officially arrived in Australia (it has been scorching here in
Melbourne), which means it is time to update my manicure and pedicure
shades for...
1 year ago
-
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Some of my Christmas Angels.
1 year ago
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I didn't realize....
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...that it's been so long since my last post. Health wise things are not
much better. I had my "work assessment capability" interview and no
surprises ther...
1 year ago
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Terug Naar Morgen (2015)
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Free Streaming Terug Naar Morgen in Best LookNow you can play full Terug
Naar Morgen in best look with duration 86 Min and was released on
2015-09-30 with...
1 year ago
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Its been a while..
-
How is everybody ? Its been a while since updating this blog, mainly
because I just haven't had the energy to do it, but today is one of them
days that I f...
1 year ago
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宮崎風俗バイト未経験者は老舗がおすすめ
-
未経験者が宮崎風俗バイトの求人情報を探す場合にはわからないこともたくさんあるでしょう。
未経験者なら老舗の風俗店がいいでしょう。老舗で大手のお店ほかの店舗との違いノウハウや実績がありますので、新人が入った場合も、軌道に乗
Continue...
1 year ago
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Why blog?
-
Things have been quiet around here for quite a while. Thankfully, this
isn't due to a deterioration in my health; I've just been working on other
projects ...
1 year ago
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Don't Join th CDC Rescue
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DON'T JOIN THE CDC RESCUE being promoted by the CAA/SMCI supporters! All
the CDC does with its "CFS" budget is hurt M.E. patients; why should any
patient...
1 year ago
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NIH Seeks Public Input on Strategic Plan
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In response to at request from Congress, the U.S. National Institutes of
Health (NIH) is developing a 5-year strategic plan which will, among other
things,...
2 years ago
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Zestig jaar geleden werden een dokter en een verpleegster ziek – Royal Free Disease
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Vandaag precies zestig jaar geleden, op 13 juli 1955, werden een dokter en
een verpleegster ziek in het Royal Free ziekenhuis. Het was de start van
een epi...
2 years ago
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Johnson and Johnson Clean and Clear Moisturiser Part 1
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[image: Essential Moisturiser Oil free won't clog pores]
*Introduction*
Life changes can be large and small, from eating right to using healthy
skin product...
2 years ago
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Michael J Wormald Publishing
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‘The Truth will Out’, Only if you find it and write about it! Michael J
Wormald Publishing was established to publish Historical Fiction and
Non-Fiction, S...
2 years ago
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Leaving Diaspora Action Australia
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DAA Donor Drive "thank you" messages; photo: Dinesh LiyanageToday was my
last day of work at Diaspora Action Australia. It's been an amazing and
rewarding...
2 years ago
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ME/CFS Mother's Day - Mothers with ME/CFS should pride themselves of being some of the best mothers in the world
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*Happy Mother's Day!*
*Today, when it is Mother's Day, You who are mothers with ME/CFS should
rejoice, celebrate and give yourselves a big pat on the b...
2 years ago
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Saying Goodbye to My Chronic Friend Laurie from Hibernationnow
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Laurie heading to her next destination. It's been a little over a month
since my friend Laurie passed away from acute interstitial pneumonitis, a
form of...
2 years ago
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May 12
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When I got up this morning, I knew what day it was… but I still hadn’t
prepared anything. I have been so sick and unable to write or even think.
But I reme...
2 years ago
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Le Re-tour
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Today is ME Awareness Day. How do things look for us? In comparison to
five years ago when I last wrote things are much much better. Then I really
had no ...
2 years ago
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One Year Closer!
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Yeah. How can I have only written two posts in 2014? I couldn't remember
how to get into this account. Honest.
But now that I have, I see there is some c...
2 years ago
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KONSEP PENDAPATAN NASIONAL
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KONSEP PENDAPATAN NASIONALDefinisi pendapatan nasional
Pendapatan nasional adalah pendapatan yang diterima oleh golongan-golongan
masyarakat sebagai bentuk...
2 years ago
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Sadly, it's still a problem
-
Still here.
Remembered my password.
It's still frustrating living with an invisible illness.
I'm in an office environment for about 4 days a week. Fantast...
2 years ago
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Recovery
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It’s been over a year and a half since my last posting. Back when I combed
the Internet for fellow sickies’ thoughts, I’d come across archeological
remains...
2 years ago
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Who am I?
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It happened again. That thing that happens, where I'm feeling
significantly better and the world is so much brighter, tasks easier, hope
stronger, so much...
2 years ago
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A change of view come evening
-
Yesterday we noticed a cherry picker at the street light outside next door.
Assumed the bulb had gone and needed changing. But then puzzlingly it
stoppe...
2 years ago
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The IOM Report proposes new name: Systemic Exertion Intolerance Disease
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I know I haven't blogged in over a year, but I had to write something when
I saw this headline on a New York Times article:
Chronic Fatigue Syndrome Gets A...
2 years ago
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Last Post
-
To my dear followers, friends and spoon family,
I want to thank you for following this blog for the past 4 years, for your
non-stop support and for your in...
2 years ago
-
Bones Kidneys Worms Music
-
Oooh lots to mention in this post.
*Bones:*
I was recently diagnosed with Osteoporosis and I wanted to talk about this
as a warning to anyone who has a in...
2 years ago
-
Letter to Bill Gates
-
10.11.14
Dear Mr. Gates,
I'm writing you here because I cannot say what I need to in the 512
characters allowed on your blog.
Perhaps you could write...
2 years ago
-
A New Adventure
-
or The Pleasure of Your Company Is Requested My friends, I've begun a new
blog. It's not a gardening blog, though gardens will often be mentioned.
It's m...
2 years ago
-
What do you do all day? (Therapies I have tried)
-
*What did you get up to this week? What do you actually do all day?*
I don’t mind being asked these common questions, in fact I quite like it,
but it’s how...
2 years ago
-
-
I've not been here for awhile. I shut down over a year ago. I was tempted
to press delete, yet didn't I put the blog on hold. Lots of things have
happen...
2 years ago
-
GcMaf, the journey; Day 3 and 4
-
*Day 3 was Saturday August 16.*
I did fairly well after the first rally of autoimmune attack. I recovered a
bit the third day and the fourth day I was fe...
2 years ago
-
-
Go Fourth and celebrate!
-
glitter-graphics.com
3 years ago
-
-
Charity RETRO Strut, Spin & Jumping Party!!
-
Coming soon, book your place now Charity RETRO Strut, Spin & Jumping
Party!! in aid of ME Support N.I. Friday 20th June 6-8pm Club Oxygen Health
& fitness...
3 years ago
-
-
M.E. Awareness Day & Week
-
Today is M.E. Awareness Day and this week is also M.E. Awareness Week, so I
thought I'd come and write something here.
I've lived with M.E. for 23 years no...
3 years ago
-
-
Rock Concert (and Other Animals)
-
The inside of Signs Cottage is about to have a white lick of paint. Not so
much a facelift as a cheap, damage-limitation makeover. For this reason,
an...
3 years ago
-
What I Found Out in a Day on Twitter
-
I've had a Twitter account for a while, but haven’t seriously used it. However,
yesterday I spent my first full day checking my account and monitoring
twe...
3 years ago
-
My Recovery from ME/CFS/CFIDS and FMS and Complementary and Alternative Medicine (CAM)
-
Sophie Meredith
I haven't written for some years here. I do look back frequently and the
cellular memories are strong. I remember the sensation of draggin...
3 years ago
-
Realising just how much things change
-
It's been a while since I even logged into this site let alone looked at my
blog. If someone had said to me a year ago that I would be writing these
words,...
3 years ago
-
-
(A?)musing de Bergerac; artistic, idealistic and ailing: Trust All, But None Complete
-
(A?)musing de Bergerac; artistic, idealistic and ailing: Trust All, But
None Complete: A lot of conversations about trust lately. Recently, more
than ever ...
3 years ago
-
Product Review: My ID Square
-
*Sorry -- I distorted the QR because I realized I didn't want my info to be
public. And hopefully, I distorted enough that scanning it doesn't work!*
I'm ...
3 years ago
-
12 Symptoms of autoimmune disease infographic
-
There are many diseases that are classified as autoimmune diseases. Many of
these diseases share symptoms. Gretchen over at autoimmunemom.com sent us
this ...
3 years ago
-
THE WHOLE DAMN CHRONIC SITUATION: EVERYTHING HAPPENS FOR A REASON......REALLY?
-
THE WHOLE DAMN CHRONIC SITUATION: EVERYTHING HAPPENS FOR A
REASON......REALLY?: Illness is something that makes people search for
answers. This is especial...
3 years ago
-
Final week!
-
This is it, this is my last week before reintroduction phase of the FODMAPs
diet. I’m so very very excited and scared. What if I start reintroducing
foods ...
3 years ago
-
Design Wall Monday Flying Geese Valentine Style
-
This pic is sideways as I could not get blogger to pick it
up as it was rotated in my picture file the right direction.
These Flying Geese finish ou...
3 years ago
-
Christmas Tree Lights
-
Yesterday I finally started to take down my tree. I'd planned to start on
January 5 and be done by the twelfth night, but a post Christmas illness
being s...
3 years ago
-
Hiatus
-
No, I'm not returning to blogging. At least not yet. I'm still far too ill
(though slightly better than I was when last I posted). But I have been
doing a ...
3 years ago
-
The Graceful Artist
-
A little over a year ago I took an online drawing class with a fabulous
instructor named Elizabeth Johnson. Elizabeth, along with a group of
like-minded f...
3 years ago
-
What If I'm Just Lazy?
-
I don’t like to admit it, but every now and then thoughts about whether I’m
just lazy creep in. Being sick for an extended period of time can make it
hard...
3 years ago
-
24 Ways to Say Thank You: A free download from me to you.
-
Intern Michelle and I noticed that August is National Admit You're Happy
Month, and we thought about gratitude—how totally good it is for you, and
for ev...
3 years ago
-
Lyme disease recovery stories. Oh yes. It’s possible.
-
Here's a collection of inspirational recovery stories from Lyme disease.
Each person did it their own way with their own sense of determination and
grace. ...
3 years ago
-
Progress of my physical activity
-
I've been in a bit of an emotional slump this last month or so, on the
verge of tears (and beyond) constantly, and have been trying to pull myself
out of i...
3 years ago
-
Catching up again
-
Just a quick glance through the last load of moaning shows that I've missed
out a fair bit in my journal of late. We managed to get elf into our first
choi...
4 years ago
-
WHEN THE CLOCK STOPPED
-
I keep glancing at the clock. I'm counting down the hours, the minutes.
And at the same time I'm winding back the years.
Now. It would have been rig...
4 years ago
-
Fatigue is not a disease
-
Please sign a petition to pressure the Department of Health and Human
Services to take Chronic Fatigue Syndrome/myalgic encephalomyelitis
seriously. I was ...
4 years ago
-
A Move
-
[image: image]
Last May, Mike and I moved into a new apartment. At the time, we had lived
on the second floor of a 1916 duplex for nearly nine years. The...
4 years ago
-
Everything can be a prayer – it all matters.
-
Do you think you don’t matter because you can’t do “big” things anymore?
Click here to read a short entry on the blog of a Benedictine monk..
Tagged: Bened...
4 years ago
-
HAWMC Day 15: On being inspired.
-
Today I am detracting a bit from the prompt provided by Wego Health. The
topic seemed to require way too much energy and cognitive work, which I
don't ...
4 years ago
-
Weekend sendoff: To-do list
-
Plans. Continue reading →
4 years ago
-
Everything I Needed to Know About Managing My Health I Learned at Disneyland
-
The patient didn’t know it, but she was just *60 seconds away from relief.*
Standing at the doorway to Dr. Goldstein’s office with some PLO-gel
glistenin...
4 years ago
-
Woman Goes On Hannity, Says Men Should Not Rape Women, Gets Gang Rape Threats
-
A whole lotta racists, rape apologists, and NRA'ers with kneejerk reactions
to someone addressing rape culture.
4 years ago
-
MTHFR Resources
-
An independent researcher, Richard van Konynenburg, PhD., developed a
hypothesis that a genetic defect* which causes MTHFR deficiency might be a
fundamenta...
4 years ago
-
Natural, Non-Toxic, Beauty
-
Also posted on my photography blog...
www.shandymontephotography.blogspot.com
I recently sent a list of safe makeup companies to a friend who was asking
...
4 years ago
-
A Chronic Dose Has Moved, Part 2
-
Remember that post where I asked you to come over to my new site and
subscribe using either the feed button at the top right or the box on the
right sideba...
4 years ago
-
Invest in ME Website - Support ME Awareness
-
Invest in ME., myalgic encephalomyelitis., Why ME means Myalgic
Encephalomyelitis
4 years ago
-
-
Llewellyn King's Dec 15, 2012 article on the Stamford Advocate on the FDA
approval meeting of Ampligen dated Dec 20, 2012.
Llewellyn King host and producer...
4 years ago
-
Autumn Jog
-
Sometimes I just need to get out of the house. I can admit I was a bit
anti-social last week due to the whole ME thing. I'd been feeling ill for a
while an...
4 years ago
-
working title
-
4 years ago
-
WANTED: A dynamic …
-
WANTED: A dynamic, high-profile
celebrity To do for ME/CFS what Elizabeth Taylor did for AIDS, what Jerry
Lewis did fo...
4 years ago
-
Lost In The Fold
-
Several people have emailed me privately about the veracity of Lisa &
Erik’s claims, some even saying that they’re not as healthy as they make
themselves o...
4 years ago
-
Coxless Four
-
I didn't think I was going to enjoy the Olympics. The dire logo and the
oddly disturbing mascots, Wenlock and Mandeville, inspired little
confidence. Cos...
4 years ago
-
Healed by the Healer! Thank you Jesus!!
-
So, about 3 months later, I write to announce wonderful news that the *healing
that I anticipated....*
*...has HAPPENED*!
Yes: I kid you not. Jesus bro...
5 years ago
-
Just a note
-
Hi to you all. I so appreciate all your loving thoughts and prayers. I am
doing better and being much kinder to myself these days.
My brother is still no...
5 years ago
-
A Few Good Men
-
Would you actually like to find a Health Care Professional that does not
belittle you and tell you that you are crazy, just because you dare to want
a bett...
5 years ago
-
Living An Irony, Still
-
Living An Irony, Still By John Herd June 24, 2012 Many years ago I went to
my internist for a routine checkup. While seated in the waiting room I was
asked...
5 years ago
-
recovery is possible
-
[image: living chronically]
Hello friends!
Did you think I'd abandoned this blog altogether? Well, I don't post
anymore and just happened to take a look ...
5 years ago
-
show me the light
-
it had been five months since any outing (with the exception of a couple of
medical appointments i only just made it to). and i could feel my soul
wit...
5 years ago
-
Walk a mile in your own shoes
-
I’m still struggling with my future. Unsure of where I should turn next. I
was reading through my old posts and found one where I promised to not feel
guil...
5 years ago
-
Feeling blue...
-
Was getting a bit bored the other day...what could I do to bring some
excitement into my otherwise mundane & humdrum life? Like all brilliant
solutions, th...
5 years ago
-
Profit and Loss
-
For patients to have confidence in the doctors treating them, it is
essential that each patient is certain that treatment recommendations given
by their do...
5 years ago
-
Nothing, but THANK YOU for asking
-
The questions I hate most these days are ‘What are you doing? ‘, ‘So what
have you been doing lately?’, and my all time fave, ‘So what is it that YOU
do?’ ...
5 years ago
-
Introduce yourself
-
Hey People,
Many of you will have seen, and already written a little about yourself in
my *'Say Hello'* section on the right hand side of my blog. For any ...
5 years ago
-
#125~ ME/cfs: Emily's Last words ~ RIP
-
Well folks, That "Invisible Illness" ME/cfs has just claimed another loving
soul.
Another that fought long and hard and did her share of Advocacy..
Please s...
5 years ago
-
Household Of The Disabled
-
We have a unique household in that each of us; human, feline and canine are
disabled in our own way. I shall deal with our pets today as our oldest
cat, J...
5 years ago
-
-
Hot as Hell
-
So, the heat of the last 4 has made me put pen to paper. CFS + HEAT do not
compute. Add to that malaria tabs (see Malanil) – which I believe have a
cumulat...
5 years ago
-
Blogging Hiatus
-
I think I need to declare a break from blogging, or perhaps change the way
I do it. I find I am really only blogging for myself these days, to
remember wha...
5 years ago
-
dream
-
I had a happy dream last night.
I was outside. I don't know what time it was -- dark enough to be able to
see the stars, but light enough to see. All of th...
5 years ago
-
A Call For Help
-
Maria's Story - Click for YouTube vid
We are getting close to Christmas. A time when many of us spend a lot of
money on luxuries. I am writing this pos...
5 years ago
-
Verlorene Zeit hat Geburtstag
-
Neben Weihnachten und ein paar weniger schönen Jubiläen bringt der Dezember
einen weiteren Jahrestag: "Verlorene Zeit" wird heute 2 Jahre alt!
Am 4. Dezem...
5 years ago
-
Call for Candian Government to hold Rituximab Clinical Trials for ME/CFS patients
-
Sent to:
Health Minister Hon. Leona Aglukaaq : leona.aglukkaq@parl.gc.ca,
NDP Health Critic MP Libby Davies : libby.davies@parl.gc.ca
Liberal Health Critic...
5 years ago
-
CJ'S 12 Days Of Christmas
-
Day One of workshop and the assignment was Balancing Act. The brief was to
take a set of photos indoors testing different WB settings
5 years ago
-
Drifting on a Sea of Disconsolation
-
Seriously, I'm out of control. It's kind of my favorite explanation for my
life right now. "Get out of the way, everybody! Don't act like you weren't
warne...
5 years ago
-
Rituximab and immune system "resetting"
-
Inspired by friend and fellow blogger Rambler, I'm getting back to doing
some blog posts.
The big exciting news in ME/CFS is coming courtesy of two doctors...
5 years ago
-
Erased
-
This blog is no longer active.
5 years ago
-
Blogging
-
If I continue blogging, it will be at this site: In the Ever After. If….
5 years ago
-
An Update
-
Jessica is going to college! She started her first year of college this
fall, and she's loving it! And seems to be doing well. (Would she tell me
if she wa...
5 years ago
-
Reverting
-
I changed the name of my blog back to "Living the CFS Life." So much for
XMRV. At least it has drawn attention -- and research dollars -- to our
disease....
5 years ago
-
Cabin Fever
-
I love our home, which is off the beaten path. The acreage gives us
privacy, and being surrounded by forest is very peaceful. A creek meanders
through th...
5 years ago
-
It's All In My Head
-
My health problems are in my head—literally. Research, monitoring my heart
rate for 3 months, and Dr David Bell’s home test
http://aboutmecfs.org.violet.ar...
5 years ago
-
this is not a poem.
-
it's been a run on sentence kind of day
a couple of days ago i took a heavy clunk to the head
which is up there on the list of
*really bad things that should...
5 years ago
-
What's Up With Me?
-
Obviously, I've fallen off blogging. I'm popping my head up momentarily to
say I intend to be back, but not for a while. I'm taking a sabbatical from
blo...
5 years ago
-
Position statement (ICD-10-CM proposed coding issue)
-
Position statement (ICD-10-CM proposed coding issue) Shortlink:
http://wp.me/p5foE-3kj 25 September 2011 Since I continue to be
misrepresented on at least ...
5 years ago
-
Patient Actions
-
Environmental Illness/Multiple Chemical Sensitivity Petitions Position
Statement: Multiple Chemical Sensitivity Italian Petition for recognition
of Multipl...
5 years ago
-
Life, love and work
-
Well it's been over a year since I last blogged apparently! The main reason
for that really being that life has been moving on and strangely one of the
thi...
5 years ago
-
Revoking the lies
-
I'm sure all of us, at least once or twice in our lives have had harmful
words spoken over us. The problem with harmful words is that if we allow
them to...
5 years ago
-
Research paper: CFS, the immune system and viral infection, 2 July 2011
-
From the M.E. Association's website, a post by Tony Britton entitled
'Research paper: CFS, the immune system and viral infection, 2 July 2011':
From Brain,...
6 years ago
-
Thoughts on Summer
-
I love everything about summer. I love warm weather, sitting in the sun,
swimming in the ocean, grilling out, shopping for seasonal fruits and
veggies at f...
6 years ago
-
Vote for WPI!
-
[image: Vivint is giving away $1.25 Million to charities. Help us win!]
The Vivint Givesback Project needs your help in honoring local charities
that are do...
6 years ago
-
Life continues, but not this blog.
-
Gosh, I’m sorry I left so many people wondering what has happened to me
over this past year. I’ve gotten almost well, and am painting like a
fiend, and te...
6 years ago
-
Vote for WPI!
-
Hi everybody!
We're writing to you today to ask you to show your support to the ME
research via the Whittemore Peterson Institute.
They are running for th...
6 years ago
-
Pretty simple, huh?
-
*http://tinyurl.com/6a2baeh*The Telegraph today may be showing pretty
pictures of bacteria but they display OLD-STYLE microbiology when we know
at a mole...
6 years ago
-
A year on
-
Blimey, didn't realise it's been a year since I last updated!
As today is ME/CFS awareness day I thought I would spread the word again
and have linked last...
6 years ago
-
Twibbons for Profile Pictures
-
I’ve made a range of Twibbons from the awareness badges. You can add a
ribbon to your profile picture for things like blogging, Facebook and
Twitter using ...
6 years ago
-
Hiatus
-
Due to the condition of my health, I am forced to stop doing almost
everything... except manage my illness. I am very upset about this, but I
can do n...
6 years ago
-
An Interview with Laura Hillenbrand
-
http://www.naturalsolutionsmag.com/articles-display/15878/keyword/hillenbrand/Living-with-Chronic-Pain
Some excerpts:
*...
6 years ago
-
Nutritional Balancing Science
-
Over the past 3 years I have trialled all available treatments I have come
across for ME/CFS. Steadily over time I became more and more unwell which
is why...
6 years ago
-
I have a problem with Trine Tsouderos's reporting on XMRV: 3 of 3
-
Part 1
Part 2
Before I get back to this last installment, this last look at the reporting
of Trine Tsouderos to date, I want to address one specific c...
6 years ago
-
Take the Sandals from your feet for the place you stand is holy ground. (Exodus 3:5 HNV)
-
While doing some reading ( I bet you know what I was reading, and where at
in the book I was)
I came upon the phrase “holy ground” and of course my AD...
6 years ago
-
Hiatus
-
Everything is on hold indefinitely. I can barely move. :( I'm so sorry,
but I can't.
6 years ago
-
Chronic Fatigue Syndrome And Psychotherapy
-
When you have CFS one of the greatest battles you fight are the ignorant
smirks and expressed disbelief of those who think it's all in your head;
that is, ...
6 years ago
-
Is XMRV Research Dying?
-
The recent weeks have left one to wonder - is XMRV becoming a dead issue
like all other previous "causes" of Chronic Fatigue Syndrome? On the other
hand, ...
6 years ago
-
Thank You Ian Swales MP
-
A thank you email I sent to Ian Swales MP in response to the Parliamentary
debate on ME 2nd February 2011 as well as his EDM 778 on ME Research 9
February ...
6 years ago
-
Life goes on
-
How’s January shaping up for everybody? I have to say, I’m having a
considerably better January than most of my friends, but it hasn’t come
without drawbac...
6 years ago
-
Bringing the Heat: An ME/CFS Blog
-
Bringing the Heat: An ME/CFS Blog
A wide-ranging, often rankly speculative and occasionally irreverent take
on the world of chronic fatigue syndrome (ME/CFS...
6 years ago
-
-
Thought I would go with a bit of pink today....as I'm such a novice I don't
know of any other way to jazz things up a bit....anyway its Sunday evening
21.0...
6 years ago
-
Lauricidin has helped me!
-
I have a wonderful Rheumatologist who seems to be ahead of the game when it
comes to innovative treatments for my disease. I have tried many
supplements, ...
6 years ago
-
I'm a veteran.
-
I may be a beginner at blogging, but I'm a veteran at CFS/CFIDS/ME
(different names for the same disease). I caught what the doctor thought
was the flu in...
6 years ago
-
XMRV
-
I have always been looking for that White Steed, I hoped that a handsome
knight might be aboard, however it was not to be. Like Snow White I was
stricken ...
6 years ago
-
ME (CFS) and XMRV
-
In 2009, Whittemore Peterson Institute scientists discovered a significant
link between a newly-found retrovirus, xenotropic murine leukemia
virus-related ...
6 years ago
-
XRMV+ and Desperate for a Cure
-
Fifteen years ago, I was a very happy, healthy preschool teacher. I was the
wife of a man I adored and had three growing boys/men who were the light of
my ...
6 years ago
-
XMRV and Hope
-
Sometimes I think of my life as having two parts. The full and active life
I had before being diagnosed and the shadow life after the onset of ME/CFS.
Thin...
6 years ago
-
CDC: Property Worth Millions Unaccounted For - AGAIN. Different Decade Though
-
http://www.thenewamerican.com/index.php/usnews/health-care/5702-cdc-property-worth-millions-unaccounted-for
*CDC: Property Worth Millions Unaccounted For*
*...
6 years ago
-
A BELATED MESSAGE
-
Hi All.
I hope that you all had a lovely Christmas and Best Wishes for the New Year.
Working four days a week is better to manage my energy levels.The fact ...
6 years ago
-
No Laptop
-
Well Yule is upon us all and I hope everyone is having the best Yule they
can. My love and thoughts go out esp to those severely ill, and alone.
((Gentle h...
6 years ago
-
-
Holidays!
-
*Holidays!*I finished orientation yesterday, and today is the first day of
my summer holidays. Or, as it's now called "study break"... I have a tonne
of ho...
6 years ago
-
I Remember ME - A Documentary About ME/CFS
-
This is a documentary was made in 2000 by Kim Snyder and tells the story of
the outbreak of a disease at Lake Tahoe in 1984-85 which the CDC failed to
reco...
6 years ago
-
-
i grew up in the beautiful mountains of va. in a very small town with the
connectedness that comes along with that. life was often disrupted because
my fat...
6 years ago
-
Climbing out of the Bed
-
I can't believe how long it's been since I last posted. To be honest, I
haven't even turned on the computer this entire time. To say I have
crashed, would ...
6 years ago
-
Making a move
-
It's been a long time since I posted. Since then I've finished my masters
and application for the PhD studentship and now waiting on the results of
both. I...
6 years ago
-
Failure to Thrive's Last Post
-
I started this blog when I learned about XMRV, The Whittemore-Peterson
Institute, and the XMRV connection to CFS/ME.
I felt the need to chronicle the crit...
6 years ago
-
New CDC CFS/ME Website & Dangerous Lies!
-
*New CDC CFS/ME Website & Dangerous Lies!*
*New name already implemented by the CDC?*
*This could do more harm then they have done is 30 years!*
*By: Carol ...
6 years ago
-
A Picture of Health
-
The purpose of this entry is to provide some microscopy images and diagrams
generally of retroviruses, and more specifically of the XMRV retrovirus, as
wel...
6 years ago
-
-
No, you're not crazy...
-
No, you haven't clicked onto the wrong site and you haven't lost your mind
(about this anyway, lol). I have completely re-done the color scheme, font,
and ...
6 years ago
-
Blogging along on a rainy Monday
-
Well sudden changes
The weather outside is frightful, but the heatings so delightful.......
What a change in the weather its gone from hot to humid (didnt ...
7 years ago
-
It's All About M.E. Harping for Myalgic Encephalomyelitis
-
Here's another video I put out, but his one includes my harp.
http://www.youtube.com/watch?v=L8xuxUKUTKE
7 years ago
-
ME Awareness Week 2010.
-
This year I was hoping to write something witty, interesting and
informative, but then several months of unrelenting brain-fog set in and I
have absolute...
7 years ago
-
If you are not familiar with ME/CFS.
-
This is only about 3 minutes long & is some very good info if you are not
familiar with ME/CFS. It is the recent testimony of Annette Whittemore,
founder &...
7 years ago
-
Sometimes I Feel Like A Ghost
-
May 12th is International ME/CFS/FM Awareness Day. For the second year I am
participating in Blogging for ME/CFS Awareness.
For the last couple of months I...
7 years ago
-
bye, so long, i’ll see you by and by
-
this blog has reached its natural conclusion. the experiences depicted here
have turned into different experiences, to be chronicled elsewhere. this
partic...
7 years ago
-
Health Update
-
I've been doing a little better. I'm not sure why, as I've fallen of the
Paleo wagon. I'm still not eating a LOT of grains, but it's so hard to be
strict f...
7 years ago
-
-
Well its time to update this sorry blog again! The last few weeks have been
peppered with a bit of fun; which has been nice. I went to visit my
cousin's ba...
7 years ago
-
Dr. Judy Mikovits XMRV Q & A by ProHealth
-
Dr. Judy Mikovits XMRV JANUARY 22ND 2010
by ProHealth
Dr. Judy Mikovits XMRV Presentation from ProHealth on Vimeo.
Dr. Judy Mikovits XMRV Present...
7 years ago
-
2010 update
-
So, I sort of left this blog hanging at the most suspenseful moment. But I
guess people are still finding it, so I'll update. I'm doing much, much
better...
7 years ago
-
Struggling
-
Boy, the last few days I have really been struggling. Thursday night my
sleep was disrupted and I really went downhill from there. Friday and
Saturday were...
7 years ago
-
first month starting out with valcyte
-
*week 1*
so i am starting out on 1 pill a day (450 mg). so far i'm not feeling any
difference. with valcyte you are supposed to feel a die-off effect, takin...
8 years ago
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Just a note..
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...to say that I am actually still alive and well, and dare i say it,
almost thriving!!
Still no internet though.. SIGH.. looks like it'll be February bef...
8 years ago
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Finally, I've given up
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So, during the past couple of months, I've been up and down. Mostly down.
In fact, I've been progressively getting worse and a couple of weeks ago I
told D...
11 years ago
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